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About Save Jordan

This is a page dedicated to help find a cure and save Jordan Guernsey, a 29 year old man suffering from aggressive stage IV melanoma cancer. In a revolutionary way, Jordan has decided to open up his private medical records for review by this community. He is reaching out to find an answer and we NEED to help him. Nothing is off limits and everything is completely transparent. Stay involved, create an account or logon with Facebook at the top of the page, then check back daily. We will constantly be adding updates and information on his condition and progress. We will also be adding in links to literature and the latest medical research (and hope you do too). Together we can share ideas and discover a cure for Jordan's life-threatening melanoma cancer.

Click HERE TO VOTE for the best Treatment Proposal

Join Us for Our Next Google Hangout

Thursday, May 22, 2014 @ 5:00pm EST Click the link below to be redirected to the hangout! https://plus.google.com/u/1/events/ck90jagsee63ji5c9ftll3jjd1k

Thursday, May 15, 2014 @ 7:00pm EST

Thursday, May 8, 2014 @ 7:30pm EST

Thursday, May 1, 2014 @ 7:00pm EST

Thursday, April 24, 2014 @ 7:00pm EST

Thursday, April 17, 2014 @ 7:00pm EST

About: Continued

Additionally, our goal is to make this page the largest wiki for melanoma on the web. We are using the power of crowd-sourcing to build out this wiki with as much information as possible relevant to melanoma. Below you will find several areas that are in need of further research. If you have made it to this page, you can help. This project will take contributions from every level of involvement to make it successful. Help can be as simple as finding a page that you can help research and adding that information or can be as large as growing your team of individuals who will build a new treatment to help find a cure. Your fresh outlook and new way of looking at melanoma could be the answer science has been searching for all along.

This is your chance to be recognized for medical contributions that could save someone's life and to interact weekly with some of the top medical professionals around the country. Here is your once in a lifetime opportunity to be a part of something that is bigger than anything you've done so far. With your contributions, you could be recognized on the FutureDocs.com Home Page and also have the opportunity to have a full page of a Major Medical Journal, dedicated to highlighting your breakthrough melanoma treatment. These are just a couple of the ways that we will be recognizing the dedication you will give to this project over the next few months. See below for more details on getting your name in front of countless people in the medical profession and better yet, saving Jordan's life.

Jordan Today

Today Jordan Guernsey is staying positive and remaining an inspiration, despite the grim situation he is facing. He is unwavering in his ability to remain encouraged for whatever the next step life will present and continues to enlighten others on his journey. While happiness has taken him a long way, he still needs your urgency and help to cure his disease. Jordan is running out of options and is willing to be your human guinea pig, trying anything that may help slow or obliterate his cancer. Check out the latest on Jordan by clicking the dates below. You will find Jordan's latest vlog updates with video and descriptions of his current state.

Help Save Jordan Now

Jordan's state is grim and time is limited. He needs your help to find a solution and turn his battle around. You can help save Jordan by joining the movement and in turn have your work recognized by countless individuals in the medical community.

Create an Account or Sign in with Facebook

First things first, you will need to create an account or logon with Facebook at the top of this page to start adding information to this wiki.

Then check out the plan of attack below and start by helping us gather information, add content and sources to the pages, create your own new pages, formulate ideas, and inch closer to a cure for Jordan's melanoma. Jordan is a real guy, a husband, father, brother, son, and you have the opportunity to make an impact by saving his life.

Gather Information

Step 1- Begin Right Now: After you have created an account or signed in with Facebook, help the group mine for data and information regarding melanoma; it's causes, known treatments, breaking research, etc. Search all known sources (medical journals, books, the web, any other reliable sources) for all information that could lead to a cure. Feel free to create your own pages on topics that are not already listed or add to a page that is already present.

Click here for the SaveJordan Basic Tutorial

Formulate Ideas

Step 2- Formulate a New Strategy: Our deadline is May 2014. After researching all of your sources, and those that have been shared, devise a new plan of action for Jordan's treatment. Share your vision(s) on this wiki with your peers, encourage others to help build upon your concept, and of course work together to help others expand their ideas. We encourage you to step outside of what has already been tried and try to think of new innovative ways to approach this disease. Our goal to to approach this "idea" stage with a true sense of urgency, as time is of the essence and Jordan needs a solution now.

Selection Process

====VOTE HERE Click this link ->==== Treatment Proposals

Step 3- Submit and Vote: Submission deadline May 27, 2014. Here's how to participate: Submit your well curated idea to the Treatment Proposals link located below (here you will also find examples of how to submit your proposal correctly). Then all ideas will be voted up or down based the opinion of your peers and the community. You will have the ability to vote on your peers' ideas, in addition to your own. The ideas with the most votes will be passed through to the Board of Doctors, consisting of Jordan's current doctor and those who have been selected as other integral members of the team. Based on each proposals viability, safety and integrity, the top three ideas will be chosen for the treatment trial. Please note, the board will be making the final decision on which ideas get passed through to a treatment trial for Jordan.

Board of Doctors

Treatment Trial

Step 4- Trial: At this stage, the top voted and approved ideas (or combination of top voted ideas) will be used used experimentally on Jordan. The Board of Doctors will be keeping a close watch on Jordan and how he is reacting to the new treatments. Jordan and his doctor will continue to update us with his status and all details along the way. You will be informed of any changes in his general health, mental health, tumor growth/reduction, or any other pertinent information. You will want to continue to stay involved and watch to see Jordan's progress.

Recognition

Step 5- Publication: How do you get published in a Major Medical Journal or on FutureDocs.com? There will be two ways that you can be recognized by your peers and countless medical professionals by participating in this project.

  1. All members who submit an idea to the Treatment Proposals pool will be formally mentioned on the home page of FutureDocs.com.
  2. The top three ideas that are voted up and approved by the board of doctors will receive a FULL PAGE advertisement in a Major Medical Journal. This ad will feature your name(s), your breakthrough treatment and will acknowledge your hard work and dedication to the cure.

All About Jordan Guernsey

Jordan is 29 years old and lives in Utah with his family; wife Paola, daughter Izabella, and son Kyle. As mentioned, nothing is off limits when it comes to Jordan's life. He is exposing all of his medical data, from his very first doctor visit to his gene sequence, to provide this community with everything needed to lead to a cure. After discovering that a mole he had his entire life on the right side of his forehead was cancerous, Jordan has gone through numerous treatments and has been forced to make difficult decisions regarding his health. At this stage, he is looking for new options. We hope with your intellect and understanding of the brevity of the situation that you will formulate new treatment options for Jordan.

Jordan's Cancer Therapy

Jordan has been through many different phases in the past few years. Originally handing his judgement and decisions over to his doctor, then deciding to take his health into his own hands, and then finally finding a combination of both that worked for him and his family. While he has done quite a few medical treatments, he has also tried some alternative or "natural" treatments, with these he admits he wasn't able to stick with for any great length of time, due to lack of discipline or continued growth of tummors. Here you will find a list of what he has tried.

Click here for Treatments Jordan has tried

Jordan's Medical Records

Below you will see sections of Jordan's medical records, organized in chronological order. Each of the sections will link you to a list of all medical files we have from that year. Each file is formatted by date, source, and finally by record type. These files have been provided by the Ear, Nose & Throat Center of Salt Lake City, Utah, Intermountain Central Laboratory, Utah Valley Regional Medical Center and The University of Utah Hospitals and Clinics.

Miscellaneous Records

Here you will find records that cover multiple years of Jordan's treatment, including results, diagnosis, prescriptions and other patient information. These records are directly from the University of Utah Hospitals and Clinics.

2008 Records

In 2008, Jordan's mother urged him to go get a mole on the right side of his forehead checked out by a dermatologist. In August of that year, an excisional biopsy taken showed melanoma present and by October, he was back in to have wider re-excision on his right temple. Included here are the diagnoses and pathology reports.

2009 Records

The only records here are a few pathology reports examining the status of his left brow, right temple and right side of neck six months after his initial biopsy.

2010-2011 Records

After his 2009 pathology report, Jordan did well for the next three years with no major issues and required no further follow up. No records.

2012 Records

At the beginning of 2012, Jordan began noticing lumps on his neck and face and by April of that year, these lumps had become slightly painful, prompting him to go in for an office visit. One week later, he was in for surgery to remove the lumps from his neck, four of these lymph nodes were diagnosed as Stage III Melanoma. In May he was treated with radiation therapy and in August he began phase 1 of a 3 phase biochemotherapy treatment. Jordan opted not to continue with the biochemotherapy treatments and stopped after the first one, instead opted for nutrition therapy. All related reports, records and scans for 2012 are located here.

2013 Records

In January of 2013, a new nodule behind Jordan's right ear tested positive for melanoma. Then in April on recommendation from his doctor he decided to enroll in CALM, a clinical trial for locally advanced Stage IV melanoma. This treatment continued until August when the disease progressed. Jordan was then enrolled in the GSK BRAF inhibitor clinical trial and also participated in the triple tracer radiology study. All the while, there was a visible growth in his right jaw and neck lesions, which are present today. All related reports, records and scans for 2013 are located here.

2014 Records

After beginning GSK BRAF trial, and seeing treatment response in 2013, scans showed continued response to treatment in January 2014. In February his neck tumors had shrunk in size, but then plateaued. His doctor recommended revisiting immunotherapy in the future. All reports, records and scans through end of February 2014 are located here.

Meet Frank Scherer

Click the link below to read Frank's story and learn more about your cancer research from his experiences. Thank you, Frank!

Frank Scherer

RESOURCES TO HELP WITH YOUR RESEARCH

Please add databases, websites, and other resources to this list:

LATEST MEDICAL RESEARCH

UPDATE: New Breakthrough Research needs your research and evaluation now.

Here is a video representation of the three most common therapies and how they differ: http://quest.fhcrc.org/articles/2010/03/immunotherapy_flash.html

NKTR-102- Nektar Therapeutics

Anti-CD47

Nivolumab (Anti-PD-1)

Tumor Necrosis Factor

IMCgp100

TIL (Tumor Infiltrating Lymphocytes)

CAR Engineered Lymphocytes

Combinatorial Therapy Nivolumab (Anti-PD-1 & Yervoy Anti-CTLA-4)

HIV Derived Lentiviral Vectors

Options Up for Consideration

  • Energy Medicine- The science of working with the body's energies to empower people to thrive.
  • Essiac Tea-Essiac is a mixture of herbs that are combined to make a tea. The original formula included burdock root (Arctium lappa L.), slippery elm inner bark (Ulmus fulva Michx.), sheep sorrel (Rumex acetosella L.), and Indian rhubarb root (Rheum palmatum L.). Watercress (Nasturtium officinale R.Br.), blessed thistle (Cnicus benedictus L.), red clover (Trifolium pratense L.), and kelp (Laminaria digitata [Hudson] Lamx.) were added to later recipes for a product sold as Flor Essence. [1]
  • Curcumin- Found in the spice Turmeric, interferes with melanoma cells. Tests in laboratory dishes show that curcumin made melanoma skin cancer cells more likely to self-destruct in a process known as apoptosis. The same research team has found that curcumin helped stop the spread of breast cancer tumor cells to the lungs of mice. The curcumin suppressed two proteins that tumor cells use to keep themselves immortal [2]

Basic Melanoma Cancer Information

This is a great place to start helping fill in some information. Choose a topic below and research it as much as you can, list your findings and your sources.

Stages of Melanoma

Here we need to be including all information regarding all stages of melanoma cancer.

Jordan was diagnosed with stage IIIC cancer after his first biopsy and is currently at stage IV.

Traditional Treatments of Melanoma

Here we need to be listing and describing all traditional treatments of melanoma.

In sum, treatments of melanoma skin cancer are recommended based upon the stage and location of the melanoma and the patient's overall health. [3]

Alternative Treatments of Melanoma

There are also a number of alternative treatments that patients and doctors seek out to treat their melanoma. We should list and describe these treatments inside this subcategory.

High levels of Interleukin 2 with the combination of Chemotherapy can be administrated. The patient can also set up periodic surgeries to remove any shrunk, non-invasive metastases, if possible. In thins stage of cancer the Metastases may spread through the lymph which can be dangerous, so treatment methods have to be tough.

Top Melanoma Research Facilities and Organizations

The United States has an extensive number of melanoma research facilities, however there are also many other countries with top notch facilities. The best of the best should be listed here. Finding these will likely lead to helping answer the next category as well.

Top Melanoma Researchers in the Country

An extensive list of the top researchers can help us network and reach out to professionals for recommendations and answers. List the researcher name, title, works they have been involved with and/or current projects.

Communication and PR Coordinator

To contact us with cutting edge news that needs shared immediately, questions about Jordan or the site, or anything else reach out to:

Christa Withrow
Email: Christa@savejordan.org

Notes

  1. [[1]] "American Cancer Society" Essiac Tea, May 1, 2014
  2. [[2]], "Ray Sahelian" Melanoma, May 2, 2014
  3. American Cancer Society, Treatment of Melanoma Skin Cancer by Stage, March 12, 2014

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